Naya’s been making progress every day transitioning back to school, getting into a more regular eating routine and enjoying some of her favorite activities including shopping for jewelry, perfume, dresses and horseback riding. She is going to school almost every day for 2-3 classes, keeping up with math homework and about 450 calories away from being off of her feeding tube.
Starbucks hot chocolates, with whip of course, have been a staple. We’ve become experts on the calorie counts in tall and grande sizes, with whip, syrup, and milk. Thank goodness for Starbucks!!
Here is Naya studying fractions, completing her math assignment and giving herself the calories she needs to become independent. Her nausea has improved too. We’re hoping things continue as we get ready to go to Vail this month and enjoy time together as a unit, reflect on the year, and hopefully enjoy Vail. For our friends in Denver, we’ll send out an email to see if we can get together and see all of your lovely faces
A year ago today, Naya was admitted to the ER with what we thought was a stubborn infection. As you know that day changed our lives and the lives of many people around us. I thought I’d take a few moments and share some reflections (and cliches) from the past year:
- Your inner strength will surprise you. We are much, much stronger than we imagine.
- Life isn’t meant to be “in control”.
- Do your absolute best every day.
- Every day is a new day. A bad yesterday doesn’t mean today can’t be great.
- Fear requires no evidence; it just exists and it’s your choice how you face it.
- You are not alone, ever.
- Being a parent is an awesome gift and responsibility.
- Your kids watch you at all times. How you behave will get them through adversity, or not.
- Surround yourself with people who really are good to you.
- Embrace new friends who show compassion and heart.
- Best friends are always best friends no matter how long it’s been since you spoke.
- Look to your extended communities for strength.
- Rid yourself of people who wronged you. They don’t deserve your time. They know who they are.
- Tough times force bold decisions. Make them and don’t be afraid.
- Commit to living an amazing life every day.
- Buy a horse. Get a dog or two. They bring peace when nothing else works.
- Love your kids. They need it and will pass it on to their kids.
- Love your spouse or partner. He or she will get you up when you are at your absolute weakest.
- Give back, be generous and be kind. Your life will be richer when you do.
I’m sure there’s so much more, but that’s it for now. To our friends and family, thank you for being with us an entire year.
Since I saw your eyebrows adorn your face. Okay, not nearly as good as Aaron Lewis penned but still a beautiful sight to see. What a great tune!
Hair is coming in, eyebrows are getting thick and we are working on longer school days and more food not through a tube. All good things for sure and Gabby and Duke seam to like it.
Just like the best friend he has been for 8 years, Murphy went into surgery with Naya and I’m happy to report he pulled through and even comforted Naya through the journey.
Naya came out of surgery and is feeling strong and happy to have that port out of her.
It dawned on me that it may not have been apparent that Murphy’s boo boo matches Naya’s which is located under her right shoulder just like Murphy’s. The docs at CHOP operated on him and made him all better.
Here we go! Let’s get this dang I.V. Port out of my chest and the catheter out of my heart. Hanging around waiting for anesthesiology to come in always seams like it takes forever especially when you can’t eat and drink and haven’t do so since the night before.
The procedure will take 1 – 1.5 hours then we will warm up in post op and head home to get some food and water going.
Naya is getting stronger and feeling better every day. She is back riding and in school for at least a class per day. Her best friend PaintJack and her are getting re-acquainted. He is such a good boy it’s like, well riding a horse! Oh yea, PaintJack came in second in a dressage competition today. Way to go big guy!